Falling Asleep At The Wheel

Not literally......yet

We apologize that it's been close to a week since our last post, but we have been semi-conscious for most of it. Parks has been home a full week, and we are still trying to figure everything out. What works well for him and what doesn't work so well for him. It's like trying to feel out a new roommate back in my single days. What their schedule is, where they like to put things, what pushes their buttons to get them upset. Of course, there are some things that our children need that I never had to do for any other roommates, such as wiping their behinds, having them urinate on me, all night feedings, literally carrying them on my back. We have had our bumps in the road, but are surviving. Parks is growing well and is 18 inches long, weighing 5 pounds 14 ounces. He had his "minor" surgery today, and it appears to have gone very well, although I have not inspected the area yet.

Until last night Wyatt had been holding steady most of the week with no news to report as they decreased his IV dextrose and increased his breast milk. He was almost to the point of discontinuing his IV completely and graduating to bottle feeds until his blood sugar levels started to dip dangerously low again. He has really been on a roller coaster over the last week with this. His blood glucose levels were anywhere from 31 to121 throughout the night. Randi met with the neonatologist this afternoon, and we have finally said enough is enough. We requested they call in a pediatric endocrinologist who specializes in these matters. He is scheduled to see Wyatt this evening, and Randi and I are heading to the hospital later to see what was determined. They are running all sorts of blood tests in anticipation of what he might want, but we thought that at this time the ICN did not have a very clear idea of how to treat him properly. Hopefully, a fresh set of eyes will shed some light on the matter, so that we can progress in his treatment and get him home. Please, pray that some level of control will be regained in this situation and that nothing serious is wrong. We'll keep you posted.