Monday, December 10, 2007

It's a Festivus Miracle

It's an amazing thing to be living in a miracle and to recognize it. We feel that way everyday about our boys, especially Wyatt. I wanted to update everyone on some unresolved issues and bring a few things to light that may not have been addressed in this forum previously.

In addition to Wyatt not having hypoglycemia and requiring no medications, we recently found out that he no longer has an inguinal hernia, where a small portion of the bowels bulges into the groin, an umbilical hernia in his belly button, nor a hydrocele, which is a fluid-filled sac surrounding a testicle that results in swelling of the scrotum. We thought that we were going to have to have surgery to correct this, but praise God it has resolved on its own. We also corrected his torticollis through physical therapy. It's a condition in which the head is tilted toward one side. Once this was resolved, it has helped improve his plagiocephaly, a malformation of the head marked by an oblique slant to the main axis of the skull. He also underwent a CT scan to find out that he also did not have Craniosynostosis, or the premature fusion of the sutures of the bones of the skull, which would have required surgery to correct. It is sometimes an extensive procedure. Thank you Google and Wikipedia; I am not that smart. That was a lot of big words.

What is still unresolved - since, we waited before having surgeries for the hernias, Wyatt still has not had the snip-snip on his manhood. I joked with Randi that we could have one boy with and one boy without, but that would be a cruel joke that would play out in the years to come. Wyatt still showed some white matter loss on his original brain MRI in the NICU. We may have another MRI down the road to check on that, but we may not. We found out yesterday that Wyatt has a case of Duane Syndrome, a rare, congenital disorder of eye movement. We will continue to also follow up with this over the next 6 months, but it doesn't appear that it will negatively impact his vision. We continue to work with a physical therapist and a infant development specialist, each once a week, to make sure he doesn't get too far behind his brother developmentally. They both should be hitting some big milestones in the upcoming months - sitting up, crawling, walking, etc - and his size puts him at a little disadvantage.

Other than that, he's is a healthy little boy. He went for his 6 month checkup yesterday and is now in the 10th percentile for weight. He is finally getting there. Before I say this I want you to know that we are not militant or anything, we have not gotten either of them vaccinated. It is something we are not comfortable with considering their prematurity, Wyatt's white matter loss in his brain, statistics that 1 in 93 male children are now Autistic, etc. We are keeping them relatively quarantined to large numbers of outsiders and are going to get them eventually, on our own terms, not on the required schedule. Randi was a pharma rep, we know how those clinical trials are conducted. Also, frankly, I do not want to tempt fate. They are developing very well, and we do not want to do anything to adversely affect that.


Carrie said...

First of all - Praise the Lord for the abundant miracles! Second - Praise the Lord for parents like you who are informed and doing what is right for YOUR family. Talk of not vaccinating often makes people uneasy and I applaud you for standing by your decision.(It happens to be similar to our decision on vaccines.)

Lori said...

I was so amazed at how much they both have changed since I last saw them! They are doing great! Wyatt is quite the little trooper, he handled therapy the other day like a champ! Parks even joined in the fun and they "chatted" for a while! LOL!

Michelle said...

Good for you. Don't vaccinate them yet. I wish I had waited on my youngest. Love the pictures of the Christmas sweaters. Oh, btw, I have been following this blog since last spring from Jenn.

Anonymous said...

Hey Randi! Just checking out your blog. It has been a while. The boys are very handsome and thank God that Wyatt doesn't need any surgeries.

You mentioned his hernia and hydrocele and that it has resolved. My little guy, Christian (now 20 mths) had surgery the end of October for this problem. It was causing his left testicle from dropping so they corrected it and pulled his "boy" down into position. He also has Duane's syndrome and mild craniosynostosis (I think you knew about the cranio when I was working with Dr. Wyatt) No surgeries for that though.

Enough rambling! The boys are gorgeous. Take care.